A Word About Paul’s Reality

For those perhaps just joining and having not read all the way back to the beginning, I should like to point out this is not intended as a mechanism for complaint or whining. I am very well aware my life could be much worse! In fact I was and remain very hesitant to openly share my daily struggles, especially in light of the fact I have made this easy for those who visit my hobby web site to find. That is one group in which I have, until now, maintained a certain measure of apparent normalcy.  I have many on air and on-line ham radio friends whom I have never met and a few I have met but who know little or nothing of my condition. It is a great risk going public with this. There is no way to predict how readers will react. I may find myself disconnected from the one group wherein I have always felt acceptance. But it was acceptance based on omission of fact, which is tantamount to false pretenses. I’m tired of pretending to be someone I’m not.

It is only in recent years, thanks to on-line forums and groups, I have come to realize there are many struggling with the same issues. Most suffer in silence. It appears to me anxiety and panic disorders may be one of the least talked about of mental illnesses. For the most part, those afflicted with these conditions are sane, intelligent, caring people who simply cannot turn off or control unwarranted fear and panic responses in everyday situations. Of course no two people experience it in exactly the same way. There is a wide range of anxiety disorders, and all can range from mild to extreme. Nevertheless, it is hoped writing about my own life experience will give a voice to these conditions overall, to shed, perhaps, some small measure of light on the subject. If so, then the risk and whatever consequences arise will have been worthwhile.

Some would have us believe all anxiety disorders are easily curable or at least manageable. Often I have seen this assertion in the media. I’m not sure exactly where I stand on that. Clearly I am neither cured nor managing my illness after decades of trying. There seem to be others who have failed to show marked improvement despite having tried whatever remedies were available to them. The vast majority do seem to improve and go on to lead relatively normal lives after seeking treatment for these conditions. So what is it with those few who do not? What sets us apart? I don’t know. It could be we just haven’t found the right doctors, the right help. Or it could be there are some cases which are treatment resistant, not responding to medication, therapy, etc. I don’t claim to have those answers. I want out of the virtual prison which has confined me these many years. I will continue to seek a means to freedom as long as I continue to breathe. But meanwhile I will share my story in hope that some good may come of it.

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2 Responses to A Word About Paul’s Reality

  1. jaysangl says:

    Hi Paul,
    I like how you put that people with afflictions are mostly sane, intelligent, caring people who simply cannot turn off or control unwarranted fear & panic responses in everyday situations. So well put. I know you’re taking a risk by exposing yourself to the world & I appreciate you for doing so. Reading your thoughts help me & I’m certain others. I believe I am treatment resistant by not responding to medication. I really do. I don’t think I have so much a problem with therapy. I mean it doesn’t really seem to help any or hurt any, but medication wise it has taken me so long just to get somewhat manageable. My doctor finally told me that she didn’t know what else to do. We started this last drug after she thought about it & thank goodness it has helped A LOT! Still, I’m not as I should be & I’m not one of those happy people on the commercials after taking some medication being advertised. I always have wished I were. I know people that simply can take medication & nothing else & feel great. It saddens me that we all can’t do that. I am still seeking freedom myself Paul & I sometimes feel like giving up true, but in the end I always decide that no I’m going to keep looking, keep seeking, keep fighting for some sort of normalcy. Not meaning I want to be part of the “norm” because really I like being abnormal to some extreme. I just want “my normal” whatever that may be. I’m not sure yet. I’m hoping I find out before my death what that is. Thanks for your post!
    Angel

  2. Paul K says:

    Hi Angel,
    Thanks for commenting! It helps to know someone is reading and that I’m not alone in these struggles. If what I write somehow helps one person then it is worth it. I’m very sorry you are not yet where you want to be but admire your attitude of persistence in fighting to get there. I have been in therapy for many years. I don’t feel it has helped me to improve but it does ease my overall anxiety level just knowing that I will be seeing someone regularly and can tell that person if things are really not going well. That has kept me out of crisis a few times when my therapist helped me access resources to avert disaster.

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